Koki Speaks

Video will be available shortly

Koki was diagnosed with Parkinson’s disease in her early forties. Her experience focuses on her contact with healthcare employees in hospital and primary care settings. There are six short chapters in ‘Koki’s Experience’.

  • Koki chapter 1: The diagnosis

    Koki describes how she feels about the way in which the diagnosis of Parkinson's disease was communicated to her. 

  • Koki chapter 2: Sharing the news

    Koki describes the impact of receiving the diagnosis and how shock affected her ability to function.

  • Koki chapter 3: Treated like a number

    Koki describes the impact of receiving the diagnosis and how shock affected her ability to function.

  • Koki chapter 4: The consultant's office

    Koki describes how the physical arrangement of the consultation room and the perceived non-verbal barriers created by the consultant affect her.

  • Koki chapter 5: Who believes whom?

    Koki describes difficulties she experienced in being listened to by healthcare professionals, the consequence of which was a problem with her medication.

  • Koki chapter 6: Conclusions and summary

    Koki describes how she would like to be regarded as a person by the healthcare professionals she encounters rather than "just a number".